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Sharon H replied to discussion "Does anyone have persistent low blood counts after completing treatment?" in group Non-Hodgkin's Lymphoma at 7:01 pm, February 28th, 2013
Just an update... Low white cell count has come up into normal range for the first time since November! Platelets clumped but adequate. Liver biopsy confirms primary biliary cirrhosis, but no lymphoma there! - Reply to this post - View
Just an update... Low white cell count has come up into normal range for the first time since November! Platelets clumped but adequate. Liver biopsy confirms primary biliary cirrhosis, but no lymphoma there! - Reply to this post - View
survivorJan replied to discussion "Herceptin question: Hi folks! I'm wondering if any of you had to [...]" in group Breast Cancer at 4:17 pm, February 28th, 2013
Just a quick note to mention I received Taxotere for my before-surgery (neo-adjuvant?) treatment - along with the adriamycin. Since taxotere is derivative of Taxol, it was recommended to me to take daily doses of the amino acid, L-Glutamine (I think that's what it was) to help prevent or lessen the long term side effect of peripheral neuropathy (ie. pain in fingers/hands and toes). Every so often I get shooting pains in my right hand, but other than that I haven't had too much problem with the neuropathy. Perhaps the L-glutamine helped. Might want to consider it. I think I mixed a teaspoon of the L-glutamine powder with some diluted juice daily. Found the powder at health food store. Blessings thru trials, Janet - Reply to this post - View
Just a quick note to mention I received Taxotere for my before-surgery (neo-adjuvant?) treatment - along with the adriamycin. Since taxotere is derivative of Taxol, it was recommended to me to take daily doses of the amino acid, L-Glutamine (I think that's what it was) to help prevent or lessen the long term side effect of peripheral neuropathy (ie. pain in fingers/hands and toes). Every so often I get shooting pains in my right hand, but other than that I haven't had too much problem with the neuropathy. Perhaps the L-glutamine helped. Might want to consider it. I think I mixed a teaspoon of the L-glutamine powder with some diluted juice daily. Found the powder at health food store. Blessings thru trials, Janet - Reply to this post - View
dianeo replied to discussion "3month ct scan result" in group Uterine Cancer at 3:16 pm, February 28th, 2013
my surgeon has not heard back from osu yet. she returns tuesday and will follow up then. i do not like waiting! - Reply to this post - View
my surgeon has not heard back from osu yet. she returns tuesday and will follow up then. i do not like waiting! - Reply to this post - View
ann403 replied to discussion "Status after bilateral mastectomy: NED, Remission or Cured?" in groupBreast Cancer at 3:13 pm, February 28th, 2013
I think it is because BC can recur at any time. For many cancers, five years does indicate that recurrence is very unlikely so perhaps some women have simply adopted that milestone. My surgeon and radiation oncologist were adamant that I will remain at risk BUT the risk will be highest for recurrence in the first two years (DCIS in right, IDC in left). My initial diagnosis was April 3, 2012 and the second was April 13 (yes, it was a Friday too!). I just had a clean mammogram in early February and will have a mammogram and MRI in August. Im not sure if you count from the diagnosis or your last surgery (mine was July 5) or the end of radiation but I [...] - Reply to this post - View
I think it is because BC can recur at any time. For many cancers, five years does indicate that recurrence is very unlikely so perhaps some women have simply adopted that milestone. My surgeon and radiation oncologist were adamant that I will remain at risk BUT the risk will be highest for recurrence in the first two years (DCIS in right, IDC in left). My initial diagnosis was April 3, 2012 and the second was April 13 (yes, it was a Friday too!). I just had a clean mammogram in early February and will have a mammogram and MRI in August. Im not sure if you count from the diagnosis or your last surgery (mine was July 5) or the end of radiation but I [...] - Reply to this post - View
megm replied to discussion "What are my post-HIPEC treatment options for Stage IV Colon Cancer with [...]" in group Colon Cancer at 1:39 pm, February 28th, 2013
Hi @Nettie13, what did your doctors suggest you should do as a follow up plan to monitor for recurrence? If you are unclear about that, definitely give them a call and ask. So glad to hear that you are well and thriving! - Reply to this post - View
Hi @Nettie13, what did your doctors suggest you should do as a follow up plan to monitor for recurrence? If you are unclear about that, definitely give them a call and ask. So glad to hear that you are well and thriving! - Reply to this post - View
debsuth replied to discussion "Neuropathy" in group Colon Cancer at 12:42 pm, February 28th, 2013
Hi Jaime, Yes, I think they do. It has been 4 months since the last chemo and I think I'm making progress but definitely hands are better than feet. I also think it's important to keep active and do as much of your normal routine as possible. Good Luck! - Reply to this post - View
Hi Jaime, Yes, I think they do. It has been 4 months since the last chemo and I think I'm making progress but definitely hands are better than feet. I also think it's important to keep active and do as much of your normal routine as possible. Good Luck! - Reply to this post - View
clp1935 replied to discussion "coping with hot flashes from hormonal therapy" in group Prostate Cancer at 12:20 pm, February 28th, 2013
I've not tried acupuncture, but my Oncologist told me there has been some success in diminishing the sweats. I've been on intermittent Lupron therapy on and off for 10 years, and each time I get a new shot, the sweats come up frequently than before. What the cause & effect are, I don't know. Age & diminished testosterone? Acclimation of some sort? Don't know. - Reply to this post - View
I've not tried acupuncture, but my Oncologist told me there has been some success in diminishing the sweats. I've been on intermittent Lupron therapy on and off for 10 years, and each time I get a new shot, the sweats come up frequently than before. What the cause & effect are, I don't know. Age & diminished testosterone? Acclimation of some sort? Don't know. - Reply to this post - View
jaimebrie replied to discussion "Neuropathy" in group Colon Cancer at 12:18 pm, February 28th, 2013
Thanks debsuth. I appreciate the info. Do you find the B complex vitamins are helping you? Stay strong and positive:) Best, Jaimebrie - Reply to this post - View
Thanks debsuth. I appreciate the info. Do you find the B complex vitamins are helping you? Stay strong and positive:) Best, Jaimebrie - Reply to this post - View
kpretzel replied to discussion "Herceptin question: Hi folks! I'm wondering if any of you had to [...]" in group Breast Cancer at 12:14 pm, February 28th, 2013
Taxol can be really tough! Good luck to you too!! - Reply to this post - View
Taxol can be really tough! Good luck to you too!! - Reply to this post - View
Nettie13 started discussion "What are my post-HIPEC treatment options for Stage IV Colon Cancer with [...]" in group Colon Cancer at 7:31 am, February 28th, 2013
What are my post-HIPEC treatment options for Stage IV Colon Cancer with mutated K-Ras? Two oncologists mentioned Regorafenib, with some reluctance. My CEA's have always been low, so aside from CT's and surgery, how can recurrence be tracked? Currently, I'm well and thriving. - Reply to this post - View
What are my post-HIPEC treatment options for Stage IV Colon Cancer with mutated K-Ras? Two oncologists mentioned Regorafenib, with some reluctance. My CEA's have always been low, so aside from CT's and surgery, how can recurrence be tracked? Currently, I'm well and thriving. - Reply to this post - View
Debra H replied to update "Just joined this website. Was diagnosed with follicular [...]" at 7:18 am, February 28th, 2013
Thanks for the reply. It is always so validating to hear that others are, as they say, "living with cancer." Shortly after my diagnosis, I went to Dana Farber in Boston and met with a lymphoma specialist. He was very comfortable with my decision to not do radiation. I am so glad that I chose that path. I know that I will have to do chemo at some point, but for now, I am doing well and feeling good. Thanks again for your reply. Much appreciated. - Reply to this post - View
Thanks for the reply. It is always so validating to hear that others are, as they say, "living with cancer." Shortly after my diagnosis, I went to Dana Farber in Boston and met with a lymphoma specialist. He was very comfortable with my decision to not do radiation. I am so glad that I chose that path. I know that I will have to do chemo at some point, but for now, I am doing well and feeling good. Thanks again for your reply. Much appreciated. - Reply to this post - View
Benni replied to discussion "Experience with Revlimid" in group Multiple Myeloma at 6:30 am, February 28th, 2013
You can reach me at Tbenni972000@aol.com. I check it a few times a day. Thanks so much Vickie. - Reply to this post - View
You can reach me at Tbenni972000@aol.com. I check it a few times a day. Thanks so much Vickie. - Reply to this post - View
cms123 replied to update "@kmerichko" at 4:49 am, February 28th, 2013
I had the best advise after I was diagnosed from my primary care physician. People mean well, but you really need to tune them out and listen to your doctors and the resources you find helpful. I have been told by well meaning people I should have had a double mastectomy (cancer is in one breast), while four doctors have told me a lumpectomy would yield the same results and survival rates. I am early HER2 breast cancer diagnosis and am still working on ignoring all the well wisher's advice and amateur google diagnosis'. I had a friend send me information on natural cures too. It was thoughtful, but I am not going to abandon conventional medicine. It is frustrating to have people coming out [...] - Reply to this post - View
I had the best advise after I was diagnosed from my primary care physician. People mean well, but you really need to tune them out and listen to your doctors and the resources you find helpful. I have been told by well meaning people I should have had a double mastectomy (cancer is in one breast), while four doctors have told me a lumpectomy would yield the same results and survival rates. I am early HER2 breast cancer diagnosis and am still working on ignoring all the well wisher's advice and amateur google diagnosis'. I had a friend send me information on natural cures too. It was thoughtful, but I am not going to abandon conventional medicine. It is frustrating to have people coming out [...] - Reply to this post - View
jeanie456 replied to discussion "Herceptin question: Hi folks! I'm wondering if any of you had to [...]" in group Breast Cancer at 4:34 am, February 28th, 2013
Hi KPretzel I've done fine on just the herceptin. It was the taxol/herceptin combo that slowed me down in the first round of treatment. It's a combination of tamoxifen and herceptin that are creating the brutal hot flashes. That's my biggest side effect. Other than that and the decrease in EF, I 've done great. My oncologist is going to continue to check heart function with echocardiograms, but it looks like it's stable at 54% for now. Best of luck to you! - Reply to this post - View
Hi KPretzel I've done fine on just the herceptin. It was the taxol/herceptin combo that slowed me down in the first round of treatment. It's a combination of tamoxifen and herceptin that are creating the brutal hot flashes. That's my biggest side effect. Other than that and the decrease in EF, I 've done great. My oncologist is going to continue to check heart function with echocardiograms, but it looks like it's stable at 54% for now. Best of luck to you! - Reply to this post - View
rekha replied to discussion "Stage 3 Colon Cancer-New Diagnosis" in group Colon Cancer at 4:33 am, February 28th, 2013
Thank you! - Reply to this post - View
Thank you! - Reply to this post - View
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