Daily digest for April 4th, 2013 [CancerCon
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Here's your daily digest, SusansSpecial
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Items you may find interesting
ASHRAF ALI posted: at 1:18 am, April 4th, 2013
MY WIFE UNDERGONE BRAIN RADIO SURGERY AND NOW SHE IS SUFFERING A VERY ACUTE FATIGUE EVEN CANNOT MOVE FEW STEPSHOW THIS CAN BE OVERCOM - Reply to this post - View
MY WIFE UNDERGONE BRAIN RADIO SURGERY AND NOW SHE IS SUFFERING A VERY ACUTE FATIGUE EVEN CANNOT MOVE FEW STEPSHOW THIS CAN BE OVERCOM - Reply to this post - View
dani818 started discussion "http://www.
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jschuster replied to discussion "I had a mastectomy in July of 2010, with 17 lymph nodes [...]" in groupBreast Cancer at 5:45 pm, April 3rd, 2013
Thank you for the information. If the new medicine Iam on does not work, I will try the cream. I will keep you in my prayers. Joan - Reply to this post - View
Thank you for the information. If the new medicine Iam on does not work, I will try the cream. I will keep you in my prayers. Joan - Reply to this post - View
jschuster replied to discussion "I had a mastectomy in July of 2010, with 17 lymph nodes [...]" in groupBreast Cancer at 5:42 pm, April 3rd, 2013
Thank you for the prayers and thoughts. I am trying a new medicine today. It is called gabapentin. I will have to see if it helps. I will be praying for you too. - Reply to this post - View
Thank you for the prayers and thoughts. I am trying a new medicine today. It is called gabapentin. I will have to see if it helps. I will be praying for you too. - Reply to this post - View
Jillian Chan replied to discussion "Hi everyone, just trout I would put this out there to make [...]" in groupOne-to-One Volunteer Connect at 5:02 pm, April 3rd, 2013
Also wanted to mention that if you are unable to walk but would still like to be involved you can register as a "virtual walker!" - Reply to this post - View
Also wanted to mention that if you are unable to walk but would still like to be involved you can register as a "virtual walker!" - Reply to this post - View
Jillian Chan replied to discussion "Hi everyone, just trout I would put this out there to make [...]" in groupOne-to-One Volunteer Connect at 4:03 pm, April 3rd, 2013
Thought, not trout! - Reply to this post - View
Thought, not trout! - Reply to this post - View
Jillian Chan started discussion "Hi everyone, just trout I would put this out there to make [...]" in groupOne-to-One Volunteer Connect at 4:02 pm, April 3rd, 2013
Hi everyone, just trout I would put this out there to make it easy for you to register to walk on our team! Follow the link below, then click "My team page" and "Join our team." Some email systems do not support the use of links and therefore this link may not appear to work. If so, copy and paste the following into your browser: http://www.jimmyfundwalk.org/
Hi everyone, just trout I would put this out there to make it easy for you to register to walk on our team! Follow the link below, then click "My team page" and "Join our team." Some email systems do not support the use of links and therefore this link may not appear to work. If so, copy and paste the following into your browser: http://www.jimmyfundwalk.org/
sarahtorri started discussion "More chemo after pancreatitis??? Hi All, My mother has Stage 4 Small [...]" in group Chemotherapy at 2:53 pm, April 3rd, 2013
More chemo after pancreatitis??? Hi All, My mother has Stage 4 Small Intestine cancer with mets to the liver. She was diagnosed in October 2012 and has since had 4 rounds of FOLFOX, 4 rounds of FOLOFIRI w/Avastin and 2 rounds of FOLFIRI w/Cetuximab. She had a bout of acute pancreatitis starting Easter morning and spent two days in the hospital. She is home now, but not fully recovered. Her 3rd round of chemo was cancelled for this week. Since starting the FOLFIRI w/Cetux, she's been saying that she feels like her body is telling her that she doesn't need any more chemo and now, with the pancreatitis, she is gun shy about doing another round of chemo. They don't know what the cause of [...] - Reply to this post - View
More chemo after pancreatitis??? Hi All, My mother has Stage 4 Small Intestine cancer with mets to the liver. She was diagnosed in October 2012 and has since had 4 rounds of FOLFOX, 4 rounds of FOLOFIRI w/Avastin and 2 rounds of FOLFIRI w/Cetuximab. She had a bout of acute pancreatitis starting Easter morning and spent two days in the hospital. She is home now, but not fully recovered. Her 3rd round of chemo was cancelled for this week. Since starting the FOLFIRI w/Cetux, she's been saying that she feels like her body is telling her that she doesn't need any more chemo and now, with the pancreatitis, she is gun shy about doing another round of chemo. They don't know what the cause of [...] - Reply to this post - View
Caren started discussion "Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...]" in group Cervical Cancer at 2:28 pm, April 3rd, 2013
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Caren started discussion "Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...]" in group Ovarian Cancer at 2:28 pm, April 3rd, 2013
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Caren started discussion "Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...]" in group Uterine Cancer at 2:27 pm, April 3rd, 2013
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...] Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Caren started discussion "Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join [...]" in group Dana-Farber CancerConnect Community at 2:26 pm, April 3rd, 2013
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Ask the Expert: Dr. Matulonis on gynecologic cancers April 9-11, 2013 Join the ovarian, cervical, or uterine cancer groups on April 9-11 for your chance to hear directly from Ursula A. Matulonis, MD, medical director and program leader of the Gynecologic Cancer Treatment Center at Dana-Farber/Brigham and Women’s Cancer Center. - Reply to this post - View
Karen Shannon replied to discussion "Regorafenib-- Advanced colorectal cancer" in group Colon Cancer at 1:10 pm, April 3rd, 2013
Thank you, one more question, do you take shots or pills ? My son is taking 2 injections a day. How do they monitor the clots and do they monitor the blood thinner levels? And how often? Thank you - Reply to this post - View
Thank you, one more question, do you take shots or pills ? My son is taking 2 injections a day. How do they monitor the clots and do they monitor the blood thinner levels? And how often? Thank you - Reply to this post - View
wendelloma replied to discussion "Regorafenib-- Advanced colorectal cancer" in group Colon Cancer at 12:41 pm, April 3rd, 2013
No unfortunately I have several very tiny ones and I will need to be on the thinners the rest of my life along with chemo for the rest of my life(unless there is a cure!!!) - Reply to this post - View
No unfortunately I have several very tiny ones and I will need to be on the thinners the rest of my life along with chemo for the rest of my life(unless there is a cure!!!) - Reply to this post - View
Corey replied to discussion "Looking to chat with anyone diagnosed with splenic zone NHL" in groupNon-Hodgkin's Lymphoma at 12:36 pm, April 3rd, 2013
Congratulations! That is fantastic news!! - Reply to this post - View
Congratulations! That is fantastic news!! - Reply to this post - View
da2218 replied to discussion "Looking to chat with anyone diagnosed with splenic zone NHL" in groupNon-Hodgkin's Lymphoma at 12:24 pm, April 3rd, 2013
Great news to report. Had my 4 month check up.. no signs of lymphoma at this time. Next visit not until oct!!!! Hope you are feeling well. Had a great new yoga instructor today! - Reply to this post - View
Great news to report. Had my 4 month check up.. no signs of lymphoma at this time. Next visit not until oct!!!! Hope you are feeling well. Had a great new yoga instructor today! - Reply to this post - View
Katie Goodfellow started discussion "Six Things To Do When You Learn You Have Cancer" in group One-to-One Volunteer Connect at 11:29 am, April 3rd, 2013
Did you know that Dana-Farber has a blog called Insight? Insight covers the latest scientific advances and treatment options, practical tips for patients and families coping with cancer, and compelling patient stories. Insight can be found here: http://blog.dana-farber.org/
Did you know that Dana-Farber has a blog called Insight? Insight covers the latest scientific advances and treatment options, practical tips for patients and families coping with cancer, and compelling patient stories. Insight can be found here: http://blog.dana-farber.org/
Katie Goodfellow started discussion "April events in the Blum Resource Center" in group One-to-One Volunteer Connect at 11:16 am, April 3rd, 2013
Here is a list of events taking place this month in the Blum (located on the first floor of the Yawkey building). - Reply to this post - View
Here is a list of events taking place this month in the Blum (located on the first floor of the Yawkey building). - Reply to this post - View
Katie Goodfellow started discussion "Dana-Farber/Brigham and Women's Cancer Center resources" in group One-to-One Volunteer Connect at 9:36 am, April 3rd, 2013
Here is a current list of Dana-Farber/Brigham and Women's Cancer Center resources. Feel free to reference this document when you're speaking with a patient or caregiver. Additional programs and services are listed under the "Resources" tab at the top of the CancerConnect message board. While all One-to-One volunteers receive a resource list during training, this document includes updated contact information as well as some newer programs and services. Those of you who have been involved in the One-to-One program for several years may find this list particularly helpful. - Reply to this post - View
Here is a current list of Dana-Farber/Brigham and Women's Cancer Center resources. Feel free to reference this document when you're speaking with a patient or caregiver. Additional programs and services are listed under the "Resources" tab at the top of the CancerConnect message board. While all One-to-One volunteers receive a resource list during training, this document includes updated contact information as well as some newer programs and services. Those of you who have been involved in the One-to-One program for several years may find this list particularly helpful. - Reply to this post - View
Trish V replied to discussion "Port for chemo/ herceptin - recovery of insertion? exercise restrictions?" in group Breast Cancer at 9:14 am, April 3rd, 2013
Thank you so, much for your insight. I am in the acceptance part now, and thinking I will be glad to have it. We are hoping to take a short 4 day trip before the last chemo but it would be two weeks after the port insert, so I was a little nervous. I want to go somewhere warm to swim as I assume I will go from mastectomy (radical, with anxillary nodes -sp) to radiation 3-4 weeks later, all in the june through august timeframe, so my beloved swimming will be out this summer. If you had radiation after surgery, how much time did you need to heal after radiation (recon is delayed indefinitely, as surgery will remove skin), if you don't mind me [...] - Reply to this post - View
Thank you so, much for your insight. I am in the acceptance part now, and thinking I will be glad to have it. We are hoping to take a short 4 day trip before the last chemo but it would be two weeks after the port insert, so I was a little nervous. I want to go somewhere warm to swim as I assume I will go from mastectomy (radical, with anxillary nodes -sp) to radiation 3-4 weeks later, all in the june through august timeframe, so my beloved swimming will be out this summer. If you had radiation after surgery, how much time did you need to heal after radiation (recon is delayed indefinitely, as surgery will remove skin), if you don't mind me [...] - Reply to this post - View
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